2023 Annual Workshop

Privacy in Genetics: Opportunities and Threats


Date: Thursday, September 7, 2023
Time: 8:00 am – 4:30 pm
Location: Board of Trust Room, Student Life Center (310 25th Ave S), Vanderbilt University


Full Schedule To Be Announced

8:00 - 8:45   Breakfast!
8:45 - 9:00


Welcome from the GetPreCiSe Center

Bradley Malin , Ph.D.
Co-Director, GetPreCiSe Center
Accenture Professor of Biomedical Informatics, Biostatistics, & Computer Science; Co-director, GetPreCiSe
Vanderbilt University

9:00 - 10:00


CEERs: Looking Back, Looking Forward

Gail Henderson, Ph.D. (bio)
Professor of Social Medicine
University of North Carolina at Chapel Hill

10:00 - 10:15   Break
10:15 - 11:45

Panel on Public Perceptions of Genetic Privacy

Jay Clayton, Ph.D., William R. Kenan, Jr. Professor of English Professor of Cinema and Media Arts, and Communication of Science, Engineering and Technology


Ayden Eilmus, Project Associate at NYU Grossman School of Medicine Division of Medical Ethics

  • Clones, Zombies, and Serial Killers: How Protecting Genetic Privacy Might Save Your Life

Chris Slobogin, J.D. Milton R. Underwood Chair in Law; Director, Criminal Justice Program; Affiliate Professor of Psychiatry  

  • When Can Cops Look Over Your Doctor's Shoulder? Public Perceptions of Privacy vis-a-vis Law Enforcement

Zhijun Yin, Ph.D., Assistant Professor of Biomedical Informatics and Computer Science: 

  • Beyond the Academic Opinion on #GeneEditedBabies: Learning How Public Stance About a Controversial Scientific Event Differs Across Online Social Platforms
11:45 - 1:00   Lunch!
1:00 - 2:00


Privacy Protection to Power a Learning Health System

Deven McGraw, J.D. (bio
Lead, Data Stewardship & Data Sharing
Invitae Corp.

2:00 - 3:30  

Panel on Privacy and Identity 

Ellen Wright Clayton, M.D., J.D., Craig-Weaver Professor of Pediatrics, Professor of Law, Professor of Health Policy, Center for Biomedical Ethics and Society, Co-director, GetPreCiSe

  • Are States Doing a Better Job of Protecting Genomic Privacy?

Bradley Malin, Ph.D.

  • Why De-identification Really Can Work for Large Biomedical Cohorts

Victor Borza, M.D./Ph.D. Student in Biomedical Informatics

  • Identity, Harmonization, and Representation in Big Biomedical Datasets
3:30 - 4:30  

Discussion on Future of Research in Genetic Privacy and Identity

Moderated by Ellen Wright Clayton, M.D., J.D.