2018 Workshop | GetPreCiSe: The Center for Genetic Privacy and Identity in Community Settings

Genetics: The End of Privacy?

Date: Monday, April 30, 2018
Time: 8:45 am – 1:45 pm
Location: Board of Trust Room, Student Life Center, Vanderbilt University

Agenda

8:00 - 8:45	Light breakfast

8:45 - 9:00	Welcome from the GetPreCiSe Center directors

9:00 - 10:00	Patient Preferences Towards Electronic Health Record Sharing: Implications for Privacy Technology and Clinical Research Lucila Ohno-Machado, M.D., Ph.D. Chair, Department of Biomedical Informatics Associate Dean for Informatics and Technology, School of Medicine University of California, San Diego

10:00 - 10:15	Break

10:15 - 10:45	The Fiction of Genetic Privacy Jay Clayton, Ph.D. William R. Kenan, Jr. Professor of English Director, The Curb Center Vanderbilt University Claire Sisco King, Ph.D. Associate Professor and Chair Department of Communication Studies Vanderbilt University

10:45 - 11:15	Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies James Hazel, Ph.D., J.D. Post-Doctoral Fellow Vanderbilt University

11:15 - 11:45	Can We Penalize for Misuses of Public Genomic Datasets? Bradley Malin, Ph.D. Professor of Biomedical Informatics, Biostatistics, & Computer Science Co-Director, GetPreCiSe Vanderbilt University

11:45 - 12:15	Lunch

12:15 - 1:15	Ethical Challenges in Unregulated Health Research Using Mobile Devises Mark Rothstein, J.D. Herbert F. Boehl Chair of Law and Medicine Director of the Institute for Bioethics, Health Policy and Law University of Louisville