2018 Workshop

Genetics: The End of Privacy?


Date: Monday, April 30, 2018
Time: 8:45 am – 1:45 pm
Location: Board of Trust Room, Student Life Center, Vanderbilt University



8:00 - 8:45  Light breakfast 
8:45 - 9:00 Welcome from the GetPreCiSe Center directors

9:00 - 10:00


lucila-ohno-machado.jpgPatient Preferences Towards Electronic Health Record Sharing: Implications for Privacy Technology and Clinical Research
Lucila Ohno-Machado, M.D., Ph.D.
Chair, Department of Biomedical Informatics
Associate Dean for Informatics and Technology, School  of Medicine
University of California, San Diego

10:00 - 10:15  Break
10:15 - 10:45 

JayClayton.jpgclaire-king.jpgThe Fiction of Genetic Privacy
Jay Clayton, Ph.D.
William R. Kenan, Jr. Professor of English
Director, The Curb Center
Vanderbilt University

Claire Sisco King, Ph.D.
Associate Professor and Chair
Department of Communication Studies
Vanderbilt University

10:45 - 11:15  

hazel.JPG Who Knows What, and When?: A Survey of the Privacy Policies
Proffered by U.S. Direct-to-Consumer Genetic
Testing Companies

James Hazel, Ph.D., J.D.
Post-Doctoral Fellow
Vanderbilt University

11:15 - 11:45 Malin_Bradley 2.jpgCan We Penalize for Misuses of Public Genomic Datasets?
Bradley Malin, Ph.D.
Professor of Biomedical Informatics, Biostatistics, & Computer Science
Co-Director, GetPreCiSe
Vanderbilt University
11:45 - 12:15 Lunch
12:15 - 1:15

R_Rothstien_image.jpgEthical Challenges in Unregulated Health Research Using Mobile Devises
Mark Rothstein, J.D.
 Herbert F. Boehl Chair of Law and Medicine
Director of the Institute for Bioethics, Health Policy and Law
University of Louisville