Publications

The following is a sample of publications indicative of the research conducted by the GetPreCiSe Center.

• Eugenics and genetic screening in television medical dramas
  Ayden Eilmus and Jay Clayton
  BMJ Medical Humanities. 2024: medhum-2023-012882.
   
• Genetics in the X-Men Film Franchise: Mutants as Allegories of Difference
  Sonora R. Grimsted, Katerina G. Krizner, Cynthia D. Porter, and Jay Clayton
  Frontiers in Genetics. Special Issue, “Science Fiction as a Tool in Assessing the Ethical, Legal, and Social Implications of New and Emerging Science and Technology.”. 2024; 14.
   
• Risk, Trust, and Altruism in Genetic Data Sharing
  Zeeshan Samad, Myrna Wooders, Bradley Malin, and Yevgeniy Vorobeychik
  Journal of Public Economic Theory. 2023; 25: 1251-1269.
   
• Literature, Science, and Public Policy: From Darwin to Genomics
  Jay Clayton
  Cambridge University Press. 2023.
   
• Autonomy and Bioethics in Fan Responses to Orphan Bla
  Ayden Eilmus, Avery Bradley, and Jay Claytonck
  Public Understanding of Science. 2023; in press.
• (Post)confessional mode and psychological surveillance in The Crown and Fleabag
  Sarah Hagaman
  Medical Humanities. 2023; 49(2): 1-9.
   
• When to Share Your Genome to an Online Community: A Game Theoretic Approach to Balance Privacy Risks and Familial Benefits
  Jia Guo, Ellen Wright Clayton, Murat Kantarcioglu, Yevgeniy Vorobeychik, Myrna Wooders, Zhiyu Wan, Zhijun Yin, and Bradley Malin
  Scientific Research. 2023; 13: 6932.
   
• Defending Against Membership Inference Attacks on Beacon Services
  Rajagopal Venkatesaramani, Zhiyu Wan, Bradley Malin, and Yevgeniy Vorobeychik
  ACM Transactions on Privacy and Security. 2023; 3(42): 1-32.
   
• Enabling Trade-offs in Privacy and Utility in Genomic Data Beacons and Summary Statistics
  Rajagopal Venkatesaramani, Zhiyu Wan, Bradley Malin, and Yevgeniy Vorobeychik
  Genome Research. 2023; 33(7): 1113-1123.
   
• Managing Re-identification Risks While Providing Access to the All of Us Research Program
  Weiyi Xia, Melissa Basford, Robert Carroll, Ellen Wright Clayton, Paul Harris, Murat Kantarcioglu, Yongtai Liu, Steve Nyemba, Yevgeniy Vorobeychik, Zhiyu Wan, and Bradley Malin
  Journal of the American Medical Informatics Association. 2023; 30(5): 907-914.
   
• Race, Gender, and Genetic Privacy in Kay Jamison’s An Unquiet Mind and Meri Nana-Ama Danquah’s Willow Weep for Me
  Sarah Hagaman and Jay Clayton
  Literature and Medicine, In press.
   
• Introduction: Problem-Based Collaboration
  Jay Clayton and Claire Sisco King
  Journal of Literature and Science. 2022; 14(1/2), viii-xiv.
   
• Genetics in Film and TV
  Ethan Gibbons, Isaac Stoval, Jay Clayton
  Journal of Literature and Science. 2022; 14(1/2), 1-22.
   
• Germans and Genes on Screen: Marvel’s X-Men Films
  Cynthia Porter
  Journal of Literature and Science. 2022; 14(1/2), 23-38.
   
• Genetics in Television Medical Dramas
  Lauren Furman and Jay Clayton
  Journal of Literature and Science. 2022; 14(1/2), 39-56
   
• LGBTQ+ Perspectives on Conducting Genomic Research on Sexual Orientation and Gender Identity
  Catherine Hammack-Aviran, Ayden Eilmus, Carolyn Diehl, Keanan Gabriel Gottlieb, Gilbert Gonzales, Lea K. Davis, and Ellen Wright Clayton
  Behavior Genetics. 2022; 52, 246-267.
   
• What We Talk About When We Talk About Cloning: A Literature and Bioethics Perspective on Genetic Privacy, Consent and the Family
  Paul Hamann-Rose
  Journal of Literature and Science. 2022; 14(1/2), 57-77
   
• Monstrous Proletariat: The Racial Chimera in District 9 and Sorry to Bother You
  Terrell Taylor and Claire Sisco King
  Journal of Literature and Science. 2022; 14(1/2), 78-93
   
• Genetics and Ethics in the ‘I am Legend’ Corpus
  Zachary B. Feldman and Jay Clayton
  Journal of Literature and Science. 2022; 14(1/2), 94-107
   
• The End of Genetic Privacy in the Blade Runner Canon
  Kendra H. Oliver, Stephanie Higgs, and Jay Clayton
  Journal of Literature and Science. 2022; 14(1/2), 108-124
   
• Queer Kinship: Privacy Concerns in Orphan Black
  Marcie Casey and Jay Clayton
  Journal of Literature and Science. 2022; 14(1/2), 125-139
   
• Implicit Incentives Among Reddit Users to Prioritize Attention Over Privacy and Reveal Their Faces When Discussing Direct-to-Consumer Genetic Test Results: Topic and Attention Analysis
  Yongtai Liu, Zhijun Yin, Zhiyu Wan, Chao Yan, Weiyi Xia, Congning Ni, Ellen Wright Clayton, Yevgeniy Vorobeychik, Murat Kantarcioglu, and Bradley Malin
  JMIR Infodemiology, 2022; 2(2): e35702.
   
• A Representativeness-Informed Model for Research Record Selection from Electronic Medical Record Systems
  Victor Borza, Ellen Wright Clayton, Murat Kantarcioglu, Yevgeniy Vorobeychik, and Bradley Malin
  Proceedings of the American Medical Informatics Association Annual Fall Symposium (AMIA), 2022: 259-268.
   
• How Literature and Film Shape and Reflect Public Attitudes toward Genetics
  Jay Clayton
  ELSIHub. 2022.
   
• Sociotechnical Safeguards for Genomic Privacy
  Zhiyu Wan, James Hazel, Ellen Wright Clayton, Yevgeniy Vorobeychik, Murat Kantarcioglu, and Bradley Malin
  Nature Reviews Genetics. 2022; 24(3): e31687.
   
• The Public Perception of the #GeneEditedBabies Event Across Multiple Social Media Platforms
  Congning Ni, Zhiyu Wan, Chao Yan, Yongtai Liu, Ellen Wright Clayton, Bradley Malin, and Zhijun Yin
  Journal of Medical Internet Research. 2022; 24(3): e31687.
   
• Direct-to-Consumer Genetic Testing: Prospective User's Attitudes Toward Information About Ancestry and Biological Relationships
  James Hazel, Catherine Hammack-Aviran, Kathleen Brelsford, Bradley Malin, Laura Beskow, Ellen Wright Clayton
  PLoS One. 2021; 16(11): e0260340.
   
• Time Considered as a Helix of Infinite Possibilities
  Jay Clayton
  BMJ. 2021: medhum-2020-01206.
   
• Re-identification of Individuals in Genomic Datasets Using Public Face Images
  Rajagopal Venkatesaramani, Bradley Malin, and Yevgeniy Vorobeychik
  Science Advances. 2021; 7(47): abg3296.
   
• Using Game Theory to Thwart Multi-Stage Privacy Intrusions When Sharing Data
  Zhiyu Wan, Yevgeniy Vorobeychik, Weiyi Xia, Yongtai Liu, Myrna Wooders, Jia Guo, Zhijun Yin, Ellen Wright Clayton, Murat Kantarcioglu, and Bradley Malin
  Science Advances. 2021; 7(50): abe9986.
   
• Protecting Research Data of Publicly Revealing Participants
  Kyle McKibbin, Bradley Malin, and Ellen Wright Clayton
  Journal of Law and Biosciences. 2021; 8(2): lsab028.
   
• Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review
  Alexis Walker, Vence Bonham, Angie Boyce, Ellen Wright Clayton, Debra Garcia, Stephanie Johnson, Oliver Laeyendecker, Michelle Lewis, Joseph Margolick, Debra Mathews, Michael Parker, Paul Spicer, Chloe Thio, Gail Geller, and Jeffrey Khan
  Ethics, Medicine and Public Health. 2021; 18: 100684.
   
• Does the Law Require Reinterpretation and Return of Revised Genomic Results
  Ellen Wright Clayton, Paul Appelbaum, Wendy Chung, Gary Marchant, Jessica Roberts, and Barbara Evans
  Genetics in Medicine. 2021; 23: 833-836.
   
• Enabling Realistic Health Data Re-identification Risk Assessment Through Adversarial Modeling
  Weiyi Xia, Yongtai Liu, Zhiyu Wan, Yevgeniy Vorobeychik, Murat Kantarcioglu, Steve Nyemba, Ellen Wright Clayton, and Bradley Malin
  Journal of the American Medical Informatics Association. 2021; 28(4): 744–752.
   
• A Framework for Privacy-Preserving Genomic Data Analysis Using Trusted Execution Environments
  Aref Asvadishirehjini, Murat Kantarcioglu, and Bradley Malin
  Proceedings of the IEEE International Conference on Trust, Privacy and Security in Intelligent Systems and Applications (TPS-ISA). 2020: 138-147.
   
• 'A World of Difference?': Law Enforcement, Genetic Data and the Fourth Amendment
  James Hazel and Christopher Slobogin
  Duke Law Journal. 2020; 70: 20-23.
   
• How Can Literary and Film Studies Contribute to Science Policy? The Case of Henrietta Lacks
  Jay Clayton and Claire Cisco King
  The Palgrave Handbook of Twentieth and Twenty-First Century Literature and Science. 2020: 201-219.
   
• Introduction to the Special Issue on Genetic Privacy in 21st-century Literature, Film, and TV
  Jay Clayton
  ASAP/Journal. November 16, 2020.
   
• Contested Kinship in Two Serial Comedy-Dramas, Workin’ Moms and Living with Yourself
  Sarah Hagaman
  ASAP/Journal. November 16, 2020.
   
• Bioethics in Orphan Black Fan Fiction
  Ayden Eilmus
  ASAP/Journal. November 16, 2020.
   
• Reactions to the Direct to Consumer Genetic Testing Industry in Michael Connelly’s Fair Warning /;
  Gabija Tonkunas
  ASAP/Journal. November 16, 2020.
   
• The Response to Female Characters in Genetics Films
  Alice Lillydahl
  ASAP/Journal. November 16, 2020.
   
• The Genetic Privacy Breaches in Television Medical Dramas
  Lauren S. Furman
  ASAP/Journal. November 16, 2020.
   
• Dynamic Informed Consent: A Potential Solution for Ethical Dilemmas in Population Sequencing Initiatives 
  Fida Dankar, Marton Gergely, Bradley Malin, Radja Badji, Samar Dankar, and Khaled Shuaib
  Computational and Structural Biology Journal. 2020; 18: 913-921.
   
• Game Theory for Privacy-Preserving Genomic Data 
  Zhiyu Wan, Yevgeniy Vorobeychik, Ellen Wright Clayton, Murat Kantarcioglu, and Bradley Malin
  In: Responsible Genomic Data Sharing. Elsevier Press, 2020.
   
• Health and Kinship Matter: Learning about Direct-to-Consumer Genetic Testing User Experiences via Online Discussions 
  Zhijun Yin, Lijun Song, Ellen Wright Clayton, and Bradley Malin
  PLoS One. 2020; 15(9): e0238644.
   
• Biomedical Research Cohort Membership Disclosure on Social Media
  Yongtai Liu, Chao Yan, Zhijun Yin, Zhiyu Wan, Weiyi Xia, Murat Kantarcioglu, Yevgeniy Vorobeychik, Ellen Wright Clayton, and Bradley Malin
  Proceedings of the American Medical Informatics Association Annual Fall Symposium. 2019; 607-619.
   
• Under Surveillance: Genetic Privacy in Margaret Atwood’s MaddAddam Trilogy
  Paul Hamann
  Journal of Literature and Science. 2019; 12(2): 62-79.
   
• The Law of Genetic Privacy: Applications, Implications, and Limitations
  Ellen Wright Clayton, Barbara Evans, James Hazel, and Mark Rothstein
  Journal of Law and the Biosciences. 2019; 1-36.
   
• A Semantic Cover Approach for Topic Modeling
  Rajagopal Venkatesaramani, Douglas Downey, Bradley Malin and Yevgeniy Vorobeychik
  Proceedings of the 8th Joint Conference on Lexical and Computational Semantics, 2019: 92-102.
   
• Public Attitudes Toward Direct to Consumer Genetic Testing
  Grayson Ruhl, James Hazel, Ellen Wright Clayton and Bradley Malin
  Proceedings of the American Medical Informatics Association Annual Fall Symposium. 2019; 774-783.
   
• Systematizing Genome Privacy Research: A Privacy Enhancing Technologies Perspective
  Alexandros Mittos, Emiliano de Cristofaro, and Bradley Malin
  Proceedings of the 19th Privacy Enhancing Technologies Symposium. 2019; 87-107.
   
• A Genetically Augmented Future
  Ellen Wright Clayton
  Nature. 2018; S9: 564
   
• Is It Time for A Universal Genetic Forensic Database? (Summary, Full PDF, Full Text)
  James Hazel, Ellen Wright Clayton, Bradley Malin, and Chris Slobogin
  Science. 2018; 362(6417): 898-900.
  • News stories based on this investigation: Bloomberg (11/23), Genetic Engineering & Biotechnology News (11/26), Phys.org (11/26), Forensic Magazine (11/26), Singularity Hub (11/27) 
     
• Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies
  James Hazel and Chris Slobogin
  Cornell Journal of Law and Public Policy. 2018; 28: 35-66.
  • News stories based on this investigation: Bloomberg (6/15), Bloomberg (8/2), Business Insider (7/16), Wall Street Journal (9/14) 
     
• Me and My Data
  Sarah Igo
  Historical Studies in the Natural Sciences. 2018; 48(5): 616-626.
   
• Registered Access: Authorizing Data Access
  Stephanie Dyke, Mikael Linden, Ilkka Lappalainen, Jordi Rambla De Argila, William Knox Carey, David Lloyd, J. Dylan Spalding, Moran Cabili, Giselle Kerry, Julia Foreman, Timothy Cutts, Mahsa Shabani, Laura Rodriguez, Maximilian Haeussler, Brian Walsh, Xiaoqian Jiang, Shuang Wang, Daniel Perrett, Tiffany Boughtwood, Andreas Matern, Anthony Brookes, Miro Cupak, Marc Fiume, Ravi Pandya, Ilia Tulchinsky, Serena Scollen, Samir Das, Alan Evans, Bradley Malin, Stephan Beck, Steven Brenner, Tommi Nyronen, Niklas Blomberg, Helen Firth, Matthew Hurles, Anthony Philippakis, Gunnar Ratsch, Michael Brudno, Kym Boycott, Heidi Rehm, Michael Baudis, Kazuto Kato, Bartha Knoppers, Dixie Baker, and Paul Flicek
  European Journal of Human Genetics, 2018; 26(12): 1721-1731. 
   
• A Systematic Literature Review of Individuals’ Perspectives on Privacy and Genetic Information in the United States
  Ellen Wright Clayton, Colin Halverson, Nila Sathe, and Bradley Malin
  PLoS One. 2018; 13(10): e0204417.
   
• What Will "All of Us" Mean for Each of Us
  Ellen Wright Clayton
  SciTech Lawyer. 2018; 15(1): 4-7.
   
• Detecting the Presence of an Individual in Phenotypic Summary Data
  Yongtai Liu, Zhiyu Wan, Weiyi Xia, Murat Kantarcioglu, Yevgeniy Vorobeychik, Ellen Wright Clayton, Abel Kho, David Carrell, and Bradley Malin
  Proceedings of the American Medical Informatics Association Annual Fall Symposium (AMIA). 2018; 760-769.
   
• It's All in the Timing: Calibrating Temporal Penalties for Biomedical Data Sharing
  Weiyi Xia, Zhiyu Wan, Zhijun Yin, James Gaupp, Yongtai Liu, Ellen Wright Clayton, Murat Kantarcioglu, Yevgeniy Vorobeychik, and Bradley Malin
  Journal of the American Medical Informatics Association. 2018; 25(1): 25-31.
   
• Assessing Risks to Privacy in Biospecimen Research
  Ellen Wright Clayton and Bradley Malin
  In: Specimen Science: Ethics and Policy Implications, MIT Press. 2018.
   
• A Community Effort to Protect Genomic Data Sharing, Collaboration and Outsourcing
  Shuang Wang, Xiaoqian Jiang, Haixu Tang, Xiaofeng Wang, Diyue Bu, Knox Carey, Stephanie Dyke, Dov Fox, Chao Jiang, Kristin Lauter, Bradley Malin, Heidi Sofia, Amalio Telenti, Lei Wang, Wenhao Wang, and Lucila Ohno-Machado
  Genomic Medicine. 2017; 2: 33.
   
• Controlling the Signal: Practical Protection of Genomic Data Sharing In Beacon Services
  Zhiyu Wan, Yevgeniy Vorobeychik, Murat Kantarcioglu, and Bradley Malin
  BMC Medical Genomics. 2017; 10(Suppl 2): 39.
   
• Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach
  Zhiyu Wan, Yevgeniy Vorobeychik, Weiyi Xia, Ellen Wright Clayton, Murat Kantarcioglu, and Bradley Malin
  American Journal of Human Genetics. 2017; 100(2): 316-322.
  • Award: Selected as one of the best papers in health informatics by the International Medical Informatics Association!  More information in this editorial in the International Yearbook of Medical Informatics!
     
• Building a Dossier on the Cheap: Integrating Distributed Personal Data Resources Under Cost Constraints
  Imrul Chowdhury Anindya, Harichandan Roy, Murat Kantarcioglu, Bradley Malin
  Proceedings of the 26th ACM Conference on Information and Knowledge Management (CIKM). 2017: 1549-1558.
   
• An Open Source Tool for Game Theoretic Health Data De-identification
  Fabian Prasser, James Gaupp, Zhiyu Wan, Weiyi Xia, Yevgeniy Vorobeychik, Murat Kantarcioglu, Klaus Kuhn, and Bradley Malin
  Proceedings of the 2017 American Medical Informatics Association Annual Fall Symposium (AMIA). 2017: 1430-1439.
  • Download the PDF of the presentation from the symposium