The following is a sample of presentations given by members of the GetPreCiSe Center.
- Sociotechnical Controls for Genomic Data Privacy
Bradley Malin
Annual International Conference on Intelligent Systems for Molecular Biology. July 312, 2022. - Privacy, Agency, and Relationships in the Genomic Era: Views from the Public
Ellen Wright Clayton, Ayden Eilmus, Sarah Hagaman, and Zhijun Yin
Panel Session at the 5th ELSI Congress. May 31, 2022. - Privacy Technology and It’s Transfer (or Lack Thereof)
Bradley Malin
ELSIHub Friday Forum. April 8, 2022. - Challenges and Opportunities for Machine Learning in Genomics
Bradley Malin
Keynote at the Workshop on Machine Learning in Genomics, National Human Genome Research Institute. April 13, 2021. - Direct-to-Consumer Genetic Testing: Public Perspectives and Considerations Regarding Ancestry and Kinship
Catherine Hammack-Aviron
Issues at the Intersection of Identity and Genome Science, ELSI Conversations Virtual Presentations Series. April 13, 2021. - Privacy and Trust in Biobanks at Scale
Bradley Malin
International Society for Biological And Environmental Biorepositories (ISBER) Town Hall. March 15, 2021. - Blending Technology, Policy, and Social Science to Balance Data Privacy nad Utility
Bradley Malin
Networking and Information Technology Research and Development Program (NITRD), Privacy R&D Working Group, virtual meeting. March 5, 2021. - Emerging Issues in Genomic Data Privacy
Bradley Malin
LawSeq Conference on Facing the Legal Barriers to Genomic Research and Precision Medicine. December 2, 2020. - Who am I, Where Did I Come From, and What Does it All Mean?: Direct-to-Consumer Genetic Testing for Ancestry and Kinship
Ellen Wright Clayton, Jay Clayton, Catherine Hammack-Aviron, Bradley Malin, and Zhijun Yin
American Society for Bioethics and Humanities (ASBH) Annual Conference. October 17, 2020. - Personal Views on Genomic Privacy: Lessons from a Transdisciplinary Research Program
Ellen Wright Clayton, Jay Clayton, Catherine Hammack-Aviron, Bradley Malin, and Zhijun Yin
Panel Sessions at the 7th International Workshop on Genome Privacy and Security. September 28, 2020. - Surveillance Versus Privacy
Jay Clayton
Surveillance and Humanities Virtual Conference Series. Australian National University College of Law. September 3, 2020. - Data Sharing Challenges for Biomedical AI
Bradley Malin
NIH/OD Office of Data Science Strategy (ODSS) Special Session at the 28th Conference on Intelligent Systems for Molecular Biology, virtual conference. July 14, 2020. - A World of Difference’: Law Enforcement, Genetic Data and the Fourth Amendment
Chris Slobogin
Conference on Empirical Privacy, Northwestern Law School. May 1, 2020. - Queer Time: Identity and Community in the Genome Age
Jay Clayton
Society for the Study of Narrative, Universidad de Navarra, Pamplona, Spain. 2019. - The (Explicit & Implicit) Costs of Data Privacy
Bradley Malin
National Academies Workshop on Forecasting Costs for Preserving and Promoting Access to Biomedical Data, Washington, DC. July 11, 2019. - How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care
Ellen Wright Clayton
Canadian GE3LS and Health Services and Research Policy Conference, Institute of Genetics, Canadian Institute for Health Research, Montebello, Canada. June 16, 2019.
- Drowning in a Sea of Genomic Data: Challenges of DTC Tests and Patient Requests
Ellen Wright Clayton
5th PLUGS Annual Conference, Seattle, WA. June 12, 2019.
- Data Privacy in Large Biomedical Research Repositories
Bradley Malin
University of Florida, Gainesville, FL. June 6, 2019.
- How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care
Ellen Wright Clayton
Health Law Teachers Conference, Chicago, IL. June 5, 2019.
- Best Practices for Direct-to-Consumer Genetic Testing Services: Are Industry Efforts at Self-Regulation Sufficient?
James Hazel
Consuming Genetics Conference, Petri-Flom Center, Harvard University, Cambridge, MA. May 17, 2019.
- Law Enforcement Access to Direct-to-Consumer Genetic Testing Data
James Hazel
Cold Spring Harbor Labor Laboratory Biology of Genomes Meerting, Cold Spring Harbor, NY. May 9, 2019.
- A Century of Genetic Threats in Film and Television
Jay Clayton
Global Genetic Fiction, University of Leeds, Leeds, UK. April 25, 2019.
- Private Data, Global Power: Genetic Privacy in Margaret Atwood's MaddAddam Trillogy
Paul Hamann
Global Genetic Fiction, University of Leeds, Leeds, UK. April 25, 2019.
- Why Biomedical Data Privacy Doesn't Have to Die (but it might)
Bradley Malin
School of Biomedical Informatics, University of Texas Health Science Center, Houston, TX. March 1, 2019.
- Where Is Frankenstein’s Monster? Genetics, Media, Politics
Jay Clayton
Jornada Internacional, Doscientos años de Frankenstein (1818-2018), University of Granada. November 18, 2018.
- Genetic Privacy in a Big Data World
Ellen Wright Clayton
University of Granada. November 18, 2018.
- Data Sharing (Dis)incentives
Bradley Malin
National Academies Committee on Science, Engineering, Medicine, and Policy, Washington, DC. November 8, 2018.
- Detecting the Presence of an Individual in Phenotypic Summary Data
Yongtai Liu
American Medical Informatics Association Annual Fall Symposium, San Francisco, CA. November 6, 2018.
- Stewards of the Genome: Ethical Issues Related to Data Privacy and Sharing in Psychiatric Genetics Research
Lea Davis
World Congress of Psychiatric Genetics (Education Day). October 26, 2018.
- Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies
James Hazel
Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 22, 2018.
- Visions of the Genome: Film and Television Imagine Genetics
Jay Clayton
20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
- Infection: Privacy in the I Am Legend Films
Zach Feldman
20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
- Under Surveillance: Genetic Privacy in Margaret Atwood’s MaddAddam Trilogy
Paul Hamann
20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
- Genetic Privacy in the Blade Runner Canon
Kendra Oliver
20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
- Achieving Genomic Privacy Through Sociotechnical Controls
Bradley Malin
68th American Society for Human Genetics Annual Meeting, San Diego, CA. October 17, 2018.
- Genetic Privacy and DNA Databases
Chris Slobogin
University of Florida, Gainesville, FL. October 11, 2018.
- Data Privacy in Big(ger) Biomedical Databases
Bradley Malin
National Heart, Lung, and Blood Institute; National Institutes of Health, Bethesda, MD. September 12, 2018.
- Stardom and Selfhood: The Affective Affordances of Celebrity Culture
Claire Sisco King
Rhetoric Society of America Conference, Minneapolis, MN. June 2, 2018.
- The Fiction of Privacy: Genetic Data, Ancestry Research, and Forensics
Jay Clayton
Second Annual Symposium on Cultural Heritage and Big Data, Nashville, TN. June 1, 2018.
- Socio-Technical Approaches to Inject Privacy into Biomedical Data Sharing Regimes
Bradley Malin
University of Pittsburgh Medical Center, Pittsburgh, PA. April 6, 2018.
- Studying Media Outside of Media Studies (with a focus on Genomics)
Claire Sisco King
Southern States Communication Association. April 4, 2018.
- Genomics and Privacy
Ellen Wright Clayton
Hudson Alpha, Huntsville, AL. March 28, 2018.
- Achieving Pragmatic Privacy Protections for Genomics and High-Dimensional Datasets
Bradley Malin
Shonan Meeting on Anonymization Methods and Inference Attacks: Theory and Practice. Hayama, Japan, March 6, 2018.
- Lessons (Not) to be Learned from the Debate about Genetic Privacy
Ellen Wright Clayton
University of Wisconsin at Madison. February 20, 2018.
- Genomic Data Privacy: The Sky is Not Falling
Bradley Malin
Personalized Medicine Seminar, Vanderbilt University Medical Center. October 31, 2017.
- Genomic Data Privacy: The Sky is Not Falling
- An Open Source Tool for Game Theoretic Health Data De-identification
Bradley Malin
Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 26, 2017.
- It's All About Context: How to Achieve Pragmatic Data Privacy in the Wild
Bradley Malin
Google, Mountain View, CA. October 17, 2017.
- Psychiatric Genomics, Phenomics, and Ethics Research in a 270,000-person biobank
Lea Davis
World Congress of Psychiatric Genetics. October 14, 2017.
- The PGC Data Access Portal and Genomic Privacy: Data Sharing Procedures to Satisfy All Communities
Lea Davis
World Congress of Psychiatric Genetics (Education Day). October 13, 2017.
- Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
Yevgeniy Vorobeychik
Harvard University. June 1, 2017.
- Privacy in Our Genomic Future - A View from the US
Ellen Wright Clayton
Université Panthéon-Assas. May 3, 2017.
- Data in Dystopia: The End of Privacy in Contemporary Literature and Film
Jay Clayton
Université Panthéon-Assas. May 3, 2017.
- Game Theory Can Expand Access to Genomic Data While Promoting Privacy
Zhiyu Wan
AAAI Spring Symposium on AI for Social Good, Stanford University. March 28, 2017.
- Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
Yevgeniy Vorobeychik
University of Maryland at College Park. March 23, 2017.
- Securely Learning Statistics From Administrative to DNA Records: From Theory to Practice
Bradley Malin
6th Meeting of the Commission on Evidence-Based Policy Making. February 24, 2017.
- Data Anonymization, De-identification, and Re-identification
Weiyi Xia
Tennessee Department of Health. February 23, 2017.
- Ethical Issues in Biomedical Research Using Big Data
Ellen Wright Clayton
3rd Conference for Institutional Research Ethics Education Directors in CITI Japan Project, Tokyo, Japan. January 27, 2017.
- The Records Prison: Data Surveillance Since the Sixties
Sarah Igo
Georgia Institute of Technology. January 23, 2017.
- Machine Learning Under Attack
Yevgeniy Vorobeychik
Department of Computer Science, University of Texas at Austin. January 16, 2017.
- Gaming the System for Privacy
Bradley Malin
Workshop on New Developments in Data Privacy, Isaac Newton Institute for Mathematical Sciences, University of Cambridge. December 7, 2016.
- A Humanist in the World of Genomics: Privacy, Big Data, and Science Policy
Jay Clayton
Institute for Humanities, University of Michigan. December 5, 2016.
- Nine Digits: A Biography of the SSN: 1935-1975
Sarah Igo
Purdue University. December 5, 2016.
- Nine Digits: A Biography of the SSN, 1935-1975
Sarah Igo
Histories of Data and the Database, Huntington Library. November 18, 2016.
- Context is Crucial for the Genome Privacy Debate
Ellen Wright Clayton
3rd International Workshop on Genome Privacy and Security, Chicago, IL. November 12, 2016.
- Practical Protection of Genomic Data Sharing Through Beacon Services
Zhiyu Wan
iDASH Privacy and Security Workshop. November 11, 2016.
- The Right to be Let Alone? Privacy Talk and its Limits Since the Sixties
Sarah Igo
University of Iowa Law School. October 25, 2016.
- Why Data Privacy is not Dead ... Yet
Bradley Malin
University of Texas at Dallas. September 30, 2016.
- Genetic Privacy and Identity in Community Settings (GetPreCiSe) and LawSeq – Explorations in Privacy in the US
Ellen Wright Clayton
Global Alliance for Genomics and Health Meeting at the American Society for Human Genetics Annual Meeting, Vancouver, Canada. October 16, 2016.
- Testimony on De-identification and HIPAA: What's Working, What's Not, and Where are We Going?
Bradley Malin
Subcommittee on Privacy, Confidentiality, & Security, National Committee for Vital and Health Statistics. May 23, 2016.
- What Should We Do With Biobanks?
Ellen Wright Clayton
Berman Institute of Bioethics, Johns Hopkins University. May 23, 2016.