The following is a sample of presentations given by members of the GetPreCiSe Center.

 

  • The (Explicit & Implicit) Costs of Data Privacy
    Bradley Malin
    National Academies Workshop on Forecasting Costs for Preserving and Promoting Access to Biomedical Data, Washington, DC. July 11, 2019.
     
  • How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care
    Ellen Wright Clayton
    Canadian GE3LS and Health Services and Research Policy Conference, Institute of Genetics, Canadian Institute for Health Research, Montebello, Canada. June 16, 2019.
     
  • Drowning in a Sea of Genomic Data: Challenges of DTC Tests and Patient Requests
    Ellen Wright Clayton
    5th PLUGS Annual Conference, Seattle, WA. June 12, 2019.
     
  • Data Privacy in Large Biomedical Research Repositories
    Bradley Malin
    University of Florida, Gainesville, FL. June 6, 2019.
     
  • How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care
    Ellen Wright Clayton
    Health Law Teachers Conference, Chicago, IL. June 5, 2019.
     
  • Best Practices for Direct-to-Consumer Genetic Testing Services: Are Industry Efforts at Self-Regulation Sufficient?
    James Hazel
    Consuming Genetics Conference, Petri-Flom Center, Harvard University, Cambridge, MA. May 17, 2019.
     
  • Law Enforcement Access to Direct-to-Consumer Genetic Testing Data
    James Hazel
    Cold Spring Harbor Labor Laboratory Biology of Genomes Meerting, Cold Spring Harbor, NY. May 9, 2019.
     
  • A Century of Genetic Threats in Film and Television
    Jay Clayton
    Global Genetic Fiction, University of Leeds, Leeds, UK. April 25, 2019.
     
  • Private Data, Global Power: Genetic Privacy in Margaret Atwood's MaddAddam Trillogy
    Paul Hamann
    Global Genetic Fiction, University of Leeds, Leeds, UK. April 25, 2019.
     
  • Why Biomedical Data Privacy Doesn't Have to Die (but it might)
    Bradley Malin
    School of Biomedical Informatics, University of Texas Health Science Center, Houston, TX. March 1, 2019.
     
  • Where Is Frankenstein’s Monster? Genetics, Media, Politics
    Jay Clayton
    Jornada Internacional, Doscientos años de Frankenstein (1818-2018), University of Granada. November 18, 2018.
     
  • Genetic Privacy in a Big Data World
    Ellen Wright Clayton
    University of Granada. November 18, 2018.
     
  • Data Sharing (Dis)incentives
    Bradley Malin
    National Academies Committee on Science, Engineering, Medicine, and Policy, Washington, DC. November 8, 2018.
     
  • Detecting the Presence of an Individual in Phenotypic Summary Data
    Yongtai Liu
    American Medical Informatics Association Annual Fall Symposium, San Francisco, CA. November 6, 2018.
     
  • Stewards of the Genome: Ethical Issues Related to Data Privacy and Sharing in Psychiatric Genetics Research
    Lea Davis
    World Congress of Psychiatric Genetics (Education Day). October 26, 2018.
     
  • Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies
    James Hazel
    Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 22, 2018.
     
  • Visions of the Genome: Film and Television Imagine Genetics
    Jay Clayton
    20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
     
  • Infection: Privacy in the I Am Legend Films
    Zach Feldman
    20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
     
  • Under Surveillance: Genetic Privacy in Margaret Atwood’s MaddAddam Trilogy
    Paul Hamann
    20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
     
  • Genetic Privacy in the Blade Runner Canon
    Kendra Oliver
    20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
     
  • Achieving Genomic Privacy Through Sociotechnical Controls
    Bradley Malin
    68th American Society for Human Genetics Annual Meeting, San Diego, CA. October 17, 2018.
     
  • Genetic Privacy and DNA Databases
    Chris Slobogin
    University of Florida, Gainesville, FL. October 11, 2018.
     
  • Data Privacy in Big(ger) Biomedical Databases
    Bradley Malin
    National Heart, Lung, and Blood Institute; National Institutes of Health, Bethesda, MD. September 12, 2018.
     
  • Stardom and Selfhood: The Affective Affordances of Celebrity Culture
    Claire Sisco King
    Rhetoric Society of America Conference, Minneapolis, MN. June 2, 2018.
     
  • The Fiction of Privacy: Genetic Data, Ancestry Research, and Forensics
    Jay Clayton
    Second Annual Symposium on Cultural Heritage and Big Data, Nashville, TN. June 1, 2018.
     
  • Socio-Technical Approaches to Inject Privacy into Biomedical Data Sharing Regimes
    Bradley Malin
    University of Pittsburgh Medical Center, Pittsburgh, PA. April 6, 2018.
     
  • Studying Media Outside of Media Studies (with a focus on Genomics)
    Claire Sisco King
    Southern States Communication Association. April 4, 2018.
     
  • Genomics and Privacy
    Ellen Wright Clayton
    Hudson Alpha, Huntsville, AL. March 28, 2018.
     
  • Achieving Pragmatic Privacy Protections for Genomics and High-Dimensional Datasets
    Bradley Malin
    Shonan Meeting on Anonymization Methods and Inference Attacks: Theory and Practice. Hayama, Japan, March 6, 2018.
     
  • Lessons (Not) to be Learned from the Debate about Genetic Privacy
    Ellen Wright Clayton
    University of Wisconsin at Madison. February 20, 2018.
     
  • Genomic Data Privacy: The Sky is Not Falling
    Bradley Malin
    Personalized Medicine Seminar, Vanderbilt University Medical Center. October 31, 2017.
     
  • Genomic Data Privacy: The Sky is Not Falling
  • An Open Source Tool for Game Theoretic Health Data De-identification
    Bradley Malin
    Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 26, 2017.
     
  • It's All About Context: How to Achieve Pragmatic Data Privacy in the Wild
    Bradley Malin
    Google, Mountain View, CA. October 17, 2017.
     
  • Psychiatric Genomics, Phenomics, and Ethics Research in a 270,000-person biobank
    Lea Davis
    World Congress of Psychiatric Genetics. October 14, 2017.
     
  • The PGC Data Access Portal and Genomic Privacy: Data Sharing Procedures to Satisfy All Communities
    Lea Davis
    World Congress of Psychiatric Genetics (Education Day). October 13, 2017.
     
  • Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
    Yevgeniy Vorobeychik
    Harvard University. June 1, 2017.
     
  • Privacy in Our Genomic Future - A View from the US
    Ellen Wright Clayton
    Université Panthéon-Assas. May 3, 2017.
     
  • Data in Dystopia: The End of Privacy in Contemporary Literature and Film
    Jay Clayton
    Université Panthéon-Assas. May 3, 2017.
     
  • Game Theory Can Expand Access to Genomic Data While Promoting Privacy
    Zhiyu Wan
    AAAI Spring Symposium on AI for Social Good, Stanford University. March 28, 2017.
     
  • Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
    Yevgeniy Vorobeychik
    University of Maryland at College Park. March 23, 2017.
     
  • Securely Learning Statistics From Administrative to DNA Records: From Theory to Practice
    Bradley Malin
    6th Meeting of the Commission on Evidence-Based Policy Making. February 24, 2017.
     
  • Data Anonymization, De-identification, and Re-identification
    Weiyi Xia
    Tennessee Department of Health. February 23, 2017.
     
  • Ethical Issues in Biomedical Research Using Big Data
    Ellen Wright Clayton
    3rd Conference for Institutional Research Ethics Education Directors in CITI Japan Project, Tokyo, Japan. January 27, 2017.
     
  • The Records Prison: Data Surveillance Since the Sixties
    Sarah Igo
    Georgia Institute of Technology. January 23, 2017.
     
  • Machine Learning Under Attack
    Yevgeniy Vorobeychik
    Department of Computer Science, University of Texas at Austin. January 16, 2017.
     
  • Gaming the System for Privacy
    Bradley Malin
    Workshop on New Developments in Data Privacy, Isaac Newton Institute for Mathematical Sciences, University of Cambridge. December 7, 2016.
     
  • A Humanist in the World of Genomics: Privacy, Big Data, and Science Policy
    Jay Clayton
    Institute for Humanities, University of Michigan. December 5, 2016.
     
  • Nine Digits: A Biography of the SSN: 1935-1975
    Sarah Igo
    Purdue University. December 5, 2016.
     
  • Nine Digits: A Biography of the SSN, 1935-1975
    Sarah Igo
    Histories of Data and the Database, Huntington Library. November 18, 2016.
     
  • Context is Crucial for the Genome Privacy Debate
    Ellen Wright Clayton
    3rd International Workshop on Genome Privacy and Security, Chicago, IL. November 12, 2016.
     
  • Practical Protection of Genomic Data Sharing Through Beacon Services
    Zhiyu Wan
    iDASH Privacy and Security Workshop. November 11, 2016.
     
  • The Right to be Let Alone? Privacy Talk and its Limits Since the Sixties
    Sarah Igo
    University of Iowa Law School. October 25, 2016.
     
  • Why Data Privacy is not Dead ... Yet
    Bradley Malin
    University of Texas at Dallas. September 30, 2016.
     
  • Genetic Privacy and Identity in Community Settings (GetPreCiSe) and LawSeq – Explorations in Privacy in the US
    Ellen Wright Clayton
    Global Alliance for Genomics and Health Meeting at the American Society for Human Genetics Annual Meeting, Vancouver, Canada. October 16, 2016.
     
  • Testimony on De-identification and HIPAA: What's Working, What's Not, and Where are We Going?
    Bradley Malin
    Subcommittee on Privacy, Confidentiality, & Security, National Committee for Vital and Health Statistics. May 23, 2016.
     
  • What Should We Do With Biobanks?
    Ellen Wright Clayton
    Berman Institute of Bioethics, Johns Hopkins University. May 23, 2016.