Presentations

The following is a sample of presentations given by members of the GetPreCiSe Center.

 

  • Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies
    James Hazel
    Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 22, 2018.
     
  • Visions of the Genome: Film and Television Imagine Genetics
    Jay Clayton
    20th Annual Meeting of the American Society for Bioethics and Humanities, Anaheim, CA. October 19, 2018.
     
  • Achieving Genomic Privacy Through Sociotechnical Controls
    Bradley Malin
    68th American Society for Human Genetics Annual Meeting, San Diego, CA. October 17, 2018.
     
  • Genetic Privacy and DNA Databases
    Chris Slobogin
    University of Florida, Gainesville, FL. October 11, 2018.
     
  • Data Privacy in Big(ger) Biomedical Databases
    Bradley Malin
    National Heart, Lung, and Blood Institute; National Institutes of Health, Bethesda, MD. September 12, 2018.
     
  • Stardom and Selfhood: The Affective Affordances of Celebrity Culture
    Claire Sisco King
    Rhetoric Society of America Conference, Minneapolis, MN. June 2, 2018.
     
  • The Fiction of Privacy: Genetic Data, Ancestry Research, and Forensics
    Jay Clayton
    Second Annual Symposium on Cultural Heritage and Big Data, Nashville, TN. June 1, 2018.
     
  • Socio-Technical Approaches to Inject Privacy into Biomedical Data Sharing Regimes
    Bradley Malin
    University of Pittsburgh Medical Center, Pittsburgh, PA. April 6, 2018.
     
  • Studying Media Outside of Media Studies (with a focus on Genomics)
    Claire Sisco King
    Southern States Communication Association. April 4, 2018.
     
  • Genomics and Privacy
    Ellen Wright Clayton
    Hudson Alpha, Huntsville, AL. March 28, 2018.
     
  • Achieving Pragmatic Privacy Protections for Genomics and High-Dimensional Datasets
    Bradley Malin
    Shonan Meeting on Anonymization Methods and Inference Attacks: Theory and Practice. Hayama, Japan, March 6, 2018.
     
  • Lessons (Not) to be Learned from the Debate about Genetic Privacy
    Ellen Wright Clayton
    University of Wisconsin at Madison. February 20, 2018.
     
  • Genomic Data Privacy: The Sky is Not Falling
    Bradley Malin
    Personalized Medicine Seminar, Vanderbilt University Medical Center. October 31, 2017.
     
  • An Open Source Tool for Game Theoretic Health Data De-identification
    Bradley Malin
    Symposium on Data Privacy in the Digital Age, U.S. Department of Health and Human Services, Washington, DC. October 26, 2017.
     
  • It's All About Context: How to Achieve Pragmatic Data Privacy in the Wild
    Bradley Malin
    Google, Mountain View, CA. October 17, 2017.
     
  • Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
    Yevgeniy Vorobeychik
    Harvard University. June 1, 2017.
     
  • Privacy in Our Genomic Future - A View from the US
    Ellen Wright Clayton
    Université Panthéon-Assas. May 3, 2017.
     
  • Data in Dystopia: The End of Privacy in Contemporary Literature and Film
    Jay Clayton
    Université Panthéon-Assas. May 3, 2017.
     
  • Game Theory Can Expand Access to Genomic Data While Promoting Privacy
    Zhiyu Wan
    AAAI Spring Symposium on AI for Social Good, Stanford University. March 28, 2017.
     
  • Pragmatic Game Theoretic Approaches to Privacy in the Era of Big Data
    Yevgeniy Vorobeychik
    University of Maryland at College Park. March 23, 2017.
     
  • Securely Learning Statistics From Administrative to DNA Records: From Theory to Practice
    Bradley Malin
    6th Meeting of the Commission on Evidence-Based Policy Making. February 24, 2017.
     
  • Data Anonymization, De-identification, and Re-identification
    Weiyi Xia
    Tennessee Department of Health. February 23, 2017.
     
  • Ethical Issues in Biomedical Research Using Big Data
    Ellen Wright Clayton
    3rd Conference for Institutional Research Ethics Education Directors in CITI Japan Project, Tokyo, Japan. January 27, 2017.
     
  • The Records Prison: Data Surveillance Since the Sixties
    Sarah Igo
    Georgia Institute of Technology. January 23, 2017.
     
  • Machine Learning Under Attack
    Yevgeniy Vorobeychik
    Department of Computer Science, University of Texas at Austin. January 16, 2017.
     
  • Gaming the System for Privacy
    Bradley Malin
    Workshop on New Developments in Data Privacy, Isaac Newton Institute for Mathematical Sciences, University of Cambridge. December 7, 2016.
     
  • A Humanist in the World of Genomics: Privacy, Big Data, and Science Policy
    Jay Clayton
    Institute for Humanities, University of Michigan. December 5, 2016.
     
  • Nine Digits: A Biography of the SSN: 1935-1975
    Sarah Igo
    Purdue University. December 5, 2016.
     
  • Nine Digits: A Biography of the SSN, 1935-1975
    Sarah Igo
    Histories of Data and the Database, Huntington Library. November 18, 2016.
     
  • Context is Crucial for the Genome Privacy Debate
    Ellen Wright Clayton
    3rd International Workshop on Genome Privacy and Security, Chicago, IL. November 12, 2016.
     
  • Practical Protection of Genomic Data Sharing Through Beacon Services
    Zhiyu Wan
    iDASH Privacy and Security Workshop. November 11, 2016.
     
  • The Right to be Let Alone? Privacy Talk and its Limits Since the Sixties
    Sarah Igo
    University of Iowa Law School. October 25, 2016.
     
  • Why Data Privacy is not Dead ... Yet
    Bradley Malin
    University of Texas at Dallas. September 30, 2016.
     
  • Genetic Privacy and Identity in Community Settings (GetPreCiSe) and LawSeq – Explorations in Privacy in the US
    Ellen Wright Clayton
    Global Alliance for Genomics and Health Meeting at the American Society for Human Genetics Annual Meeting, Vancouver, Canada. October 16, 2016.
     
  • Testimony on De-identification and HIPAA: What's Working, What's Not, and Where are We Going?
    Bradley Malin
    Subcommittee on Privacy, Confidentiality, & Security, National Committee for Vital and Health Statistics. May 23, 2016.
     
  • What Should We Do With Biobanks?
    Ellen Wright Clayton
    Berman Institute of Bioethics, Johns Hopkins University. May 23, 2016.