2019 Workshop

Privacy in Genetics: Opportunities and Threats


Date: Tuesday, April 16, 2019
Time: 8:45 am – 1:20 pm
Location: Board of Trust Room, Student Life Center, Vanderbilt University



8:00 - 8:45   Breakfast!
8:45 - 9:00


Welcome from the GetPreCiSe Center

Ellen Wright Clayton, M.D., J.D.
Co-Director, GetPreCiSe Center
Professor of Health Policy, Law, & Pediatrics
Vanderbilt University

9:00 - 10:00

Kate Black

Privacy and Trust in Consumer Genetics

Kate Black, J.D. (bio
Cybersecurity, Privacy & Crisis Management Group
Greenberg Traurig, LLP

10:00 - 10:10   Break
10:10 - 10:40


What Does it Really Mean That Patient Value Their Genetic Test Results?

Colin Halverson, Ph.D.
Post-Doctoral Fellow
Vanderbilt University

10:40 - 11:10 Zhijun

Health and Kinship Matter: Intuition From Online Discussions of Direct-to-Consumer Genetic Testing User Experiences

Zhijun Yin, Ph.D.
Assistant Professor of Biomedical Informatics
Vanderbilt University Medical Center

11:10 - 11:40 Jay

Overexposed: Genetic Privacy on the Big Screen

Jay Clayton, Ph.D.
William R. Kenan, Jr. Professor, Department of English
Director, Curb Center for Art, Enterprise, and Public Policy
Vanderbilt University

11:40 - 12:00   Lunch!
12:00 - 1:00

Rosanna Hertz

Random Families:  Genetic Strangers, Sperm Donor Siblings, and the Creation of New Kin

Rosanna Hertz, Ph.D. (bio)
Professor of Sociology and Women's and Gender Studies
Wellesley College

1:00 - 1:20 Brad

Wrap Up with the GetPreCiSe Center

Bradley Malin, Ph.D.
Co-Director, GetPreCiSe center
Professor of Biomedical Informatics, Biostatistics, & Computer Science
Vanderbilt University