We conduct research on the research use of EHRs, including patients’ willingness to share different types of clinical data with different types of researchers; patients’ perspectives on alternative approaches to obtaining their permission for data use; and stakeholder reactions to researcher contact with patients based on EHR phenotyping.
Funding for this research was provided by the National Library of Medicine.
Stakeholder Perspectives on Research Use of EHRs
- Brelsford KM, Spratt SE, Beskow LM. Research use of electronic health records: patients’ perspectives on contact by researchers. Journal of the American Medical Informatics Association (2018)
- Beskow LM, Brelsford KM, Hammack CM. Patient perspectives on use of electronic health records for research recruitment. BioMed Central Medical Research Methodology (2019)
- Hammack-Aviran CM, Brelsford KM, McKenna KC, Graham RD, Lampron ZM, Beskow LM. Research use of electronic health records: patients’ views on alternative approaches to permission. AJOB Empirical Bioethics (2020)
- Beskow LM, Brelsford KM, Hammack-Aviran CM. Use of electronic health records for research recruitment: researcher, IRB, and provider perspectives (coming soon)
View the educational videos we developed to support our studies of patient perspectives on research use of EHRs:
Electronic Health Records: Conveys basic information about EHRs, research use of clinical records and data, and oversight mechanisms and privacy protections employed in such research
EHR Discrepancies: Uses a hypothetical study on Type 2 diabetes to explain how and why researchers could discover potentially concerning discrepancies in EHR data