Brittle but yet broken, Charlie Ray Howell "Racing for those who can't"
Born with a rare condition, little girl had to grow new bones
Janet Amador and Salvador Martinez dressed 6-month-old Janelly Martinez-Amador for a professional photo shoot. The ventilator tubes and intravenous lines keeping their daughter alive in the neonatal intensive care unit were hidden by a tiny pink dress, ruffled socks and a matching pink-and-yellow pacifier in her mouth. With no cure or treatment available for this fragile infant's rare disease, the photo was possibly going to be her last, a keepsake for her parents when she passed. Janelly was born with practically no bones, and the delicate traces of bones she did have were disappearing.