Patient Stories

Bone disease doesn’t slow Kid President’s campaign

Robby Novak has become known to the world as ‘Kid President,’ an online YouTube sensation spreading a message about how people can “make the world more awesome.” In videos, he wears a signature black suit and red tie, looking very presidential. But take away the president from Kid President, and he’s just a typical 9-year-old “kid” – who also happens to have a rare brittle bone disease known as osteogenesis imperfecta (OI). Basically, he breaks easily.

Simmons strives to make a difference in children’s lives

Jill Simmons, M.D., encounters medical mysteries that have the makings of a science fiction film or novel. As a pediatric endocrinologist with a special interest in metabolic bone disorders, she sees patients with rare, severe medical conditions — from a child who as an infant had no visibly detectable bone on an X-ray image due to a condition called hypophosphatasia to children who suffer from a fragile bone disorder, osteogenesis imperfecta (OI), that can leave them with dozens of bone fractures before elementary school.