At Vanderbilt we understand that family members are an integral part of the healthcare team. We also know that the role of a caregiver can be challenging in many ways. Those caring for loved ones with dementia are at a higher risk for burnout. We believe caring for families is an essential part of caring for our patients.
Nashville FTD Caregiver Support Group
If you have a loved one with Frontotemporal Dementia (FTD) we welcome you to join our Nashville FTD Caregiver Support Group. This group provides a place for family members and friends of those with FTD to share their experiences and offer support to each other.
Online Resources for Families
Association for Frontotemporal Degeneration (AFTD)
Alzheimer’s Association
National Institute on Aging
https://www.nia.nih.gov/alzheimers/clinical-trials
Family Caregiver Alliance
Frontotemporal Disorders: Hope Through Research
FTD Support Forum
Recommended Books
What if it’s not Alzheimer’s, edited by Lisa Radin and Gary Radin (updated and revised 2014)
The 36 Hour Day, Nancy Mace and Peter Rabins, MD (revised and updated in 2012)
The Common Sense Guide to Dementia for Clinicians and Caregivers, by Drs. Anne M. Lipton and Cindy D. Marshall (2013)