Partnering with Patients, Families and Other Stakeholders in Healthcare Systems Research: Six PCORI-Funded Studies
Session Facilitator
Andrea Brandau
Program Associate for Improving Healthcare Systems, Patient-Center Outcomes Research Institute
Panel Members
Hanan Aboumatar (Johns Hopkins University)
Jaye Bea Smalley (PCORI)
Julie Gassaway (Shepherd Center)
Amina Alio (University of Rochester Medical Center)
Teri Browne (University of South Carolina)
Donna Carden (University of Florida, Gainesville)
Hadley Sauers-Ford (Cincinnati Children's Hospital Medical Center)
Lewis Hsu (University of Illinois)
Barbara Lutz (University of North Carolina-Wilmington)
Edna Shattuck (Patient Stakeholder)
Overall Learning Objective
Describe multiple approaches for engaging patients, families and other stakeholders in research, and cite examples of engagement structures and processes within select PCORI-funded research studies.
Click here to download the abstract from this Learning Lab.
Building Innovative Solutions
Presenters
Shauntice Allen (University of alabama at Birmingham)
Alaina Pineda (Clarus Consulting Group)
Overall Learning Objective
Participants will be able to construct a 30-minute, interactive workshop activity to engage community representatives in innovative, solution-focused exercises.
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Community-Academic Grants Administration Translation (CAGAT): Collaboratively Engaging Partnership Capacity to Improve Grants Management
Presenters
Lori Carter-Edwards (UNC Gillings School of Global Public Health; NC Translational and Clinical Sciences Institute)
Lisa D. Quarles (NC Translational and Clinical Sciences Institute)
Overall Learning Objective
Develop a strategic plan for effectively engaging partners from all three types of communities in the grants management process.
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Helping Basic Scientists Engage with Community Partners to Enrich and Accelerate Translational Research
Authors/Presenters*
Rhonda G. Kost (The Rockefeller University)*
Kimberly S. Vasquez (The Rockefeller University)*
Maria Pardos de la Gandara (The Rockefeller University)*
Teresa H. Evering (The Rockefeller University)
Peter R. Holt (The Rockefeller University)
Andrea Leinberger-Jabari (The Rockefeller University)
Maija Neville-Williams (The Rockefeller University)
Barry S. Coller (The Rockefeller University)
Jonathan N. Tobin (The Rockefeller University, Clinical Directors Network (CDN))
Overall Learning Objective
Understand how CEnR-Nav can be used to develop and strengthen collaborations among academic and community stakeholders in order to create protocols that address mutual interests.
Click here to download the abstract from this Learning Lab.
Developing a Program for Research Ambassadors in Diverse Community Settings: Opportunities to Diversify Research Participation
Presenters
Katrina Kubicek (Southern California Clinical and Translational Science Institute)
Marisela Robels (Southern California Clinical and Translational Science Institute)
Overall Learning Objective
Develop a community-engaged approach to increase scientific literacy and understanding of research in diverse communities.
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Community Leaders' Guidance for Researchers on Building and Maintaining Relationships for Successful Community Engaged Research Projects
Presenters/Community Faces of Utah Collaborative
Ana Sanvhez-Birkhead (Hispanic Health Care Task Force & University of Utah College of Nursing)
Pastor France A. Davis (Calvary Baptist Church)
Valentine Mukundente (Best of Africa)
Eruera "Ed" Napia (Urban Indian Center of Salt Lake)
O. Fahina Tavake-Pasi (National Tongan American Society)
Tatiana Allen-Webb (Utah Center for Clinical and Translational Science)
Stephen C. Alder (University of Utah School of Medicine)
Heather Coulter (Utah Center for Clinical and Translational Science)
Louisa A. Stark (Utah Center for Clinical and Translational Science)
Overall Learning Objective
Participants will learn from diverse community leaders and academic collaborators, multiple ways to build trusting relationships, facilitate successful CBPR collaborations and maintain them.
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Evidence to Policy: Strategies and Methods for Stakeholder Engaged Evidence-to-Policy Translation to Promote Health Equity
Authors/Presenters
Paula Fleisher (University of California, San Francisco)
Kevin Grumbach (University of California, San Francisco)
Wylie Liu (University of California, San Francisco)
James Rouse Iñiguez (University of California, San Francisco)
L. Schmidt (University of California, San Francisco)*
R.A. Vargas (University of California, San Francisco)*
Overall Learning Objective
How to promote knowledge of health policy evidence among researchers and community partners/stakeholders to communicate and act upon research findings in relevant, accessible and strategic ways.
Click here to download the abstract from this Learning Lab.
The SEED Method for Stakeholder Engagement in Question Development and Prioritization
Presenters
Emily Zimmerman (Virginia Commonwealth University)
Sarah Cook (Virginia Commonwealth University)
Chanel Bea (Virginia Commonwealth University)
Travis White (Virginia Commonwealth University)
Overall Learning Objective
Learn about a new method for patient and stakeholder engagement in research question development.
Click her to download the abstract from this Learning Lab.
Appreciative Inquiry Boot Camp Translation Workshop
Panel Presenters
Linda Zittleman (High Plans Research Network Community Advisory Council)
Don Nease, Jr. (University of Colorado, CTSI)
Maret Felzien (High Plans Research Network Community Advisory Council)
Ned Norman (High Plans Research Network Community Advisory Council)
Doreen Martinez (University of Colorado, Boulder)
Montelle Taméz (University of Colorado, CTSI)
Jack Westfall (High Plans Research Network Community Advisory Council)
Overall Learning Objective
Identify examples of how Appreciative Inquiry identifies and codifies the random success into the usual care that can enhance and alter clinical practice and community health.
Click here to download the abstract from this Learning Lab.
Engagement Strategies: Approaches for Initiating Partnerships
Presenters
Mickey Eder (University of Minnesota)
Catherine Striley (University of Florida)
Brenda Mollis (University of Washington)
Overall Learning Objective
Recognize different approaches to initiating engagement.